The Nature of Disease

2011-5-22 Great WallMy disease is cancer, specifically multiple myeloma. Since I’m in the middle of treatment, I tend to think about the nature of “disease.”

Scientists tell us that we all have cancer cells within us. What makes them go crazy in some of us or morph into specific kinds of cancer is often a mystery. We just know it happens. Circumstances may contribute to their explosion, like cigarette smoke or radiation, but other people may have the same set of circumstances and are unaffected.

And, as my husband often says, life is a fatal disease. One thing is true – we will all die of something. Mine just happens to have a name.

I can’t help but relate spiritually. We all carry the ability to do evil within us. It’s part of our humanity, our “less-than-god-ness,” our mortality. For the most part, we keep it in check, disciplining ourselves to not commit murder, even if we are angry. But sometimes it does explode, doing damage to ourselves and others.

Just like cancer, evil/sin can be growing inside and we don’t even realize it. What has been deadly about MM is that you didn’t have symptoms until it was too late. Even then, they were common life symptoms like fatigue that everyone else has, so comparing yourself to others didn’t help. People often died within weeks of diagnosis. Doctors have found genes and conditions that might develop into MM that heighten monitoring but not prevention.

In the same way, bitterness and disappointment can grow subconsciously until an ugly side comes out. By then, cancerous habits and relationships can ruin families, children and lives. Decisions are made for self-survival rather than the benefit of others.

And unless there is some intervention treatment, there is no hope. No amount of perfect diet or discipline exists to prevent cancer. Even if we can keep outward symptoms in check, inward tumors like bitterness or lust grow. While we try to be better, we become more aware of how we fail.

I’m glad that for my cancer there is an intervention treatment. Chemo/transplant will not totally rid me of the disease — it will come back. But for the moment, I am given a reprieve.

For those who follow my blog, you know I am a follower of Jesus. He is the only intervention treatment I know for sin. It will never be irradiated in this life just as my body will never be cancerless.  As hard as I might try to stop it, it grows as a part of my mortality.  Only the substitutional death of Jesus is the cure in a life that is to come.

Eating the Elephant – Round 1 Week 1 of chemo

I’m the kind of person who likes to make goals — anyone who knows me will agree with me. One of my favorite saying is, “How do you eat an elephant? One bite at a time.”

So I’m breaking my elephant of cancer into smaller goals, like starting at the elephant’s tail and working my way up. That way I can celebrate each day/each week as an accomplishment.

How am I feeling? Well, I can tell it is doing something. I feel different with the drugs in my system. Nothing has been really bad so far. My main system in shakiness internally and externally. I can’t hold my hand steady and my insides feel like I’m  anxious when I am not. And the 2nd drug that I take on Wednesdays gives me a headache, which is probably why this blog entry will be short.

IMG_0848On top of everything, I stubbed my toe (won’t you be glad when you quite getting pictures of my feet!). I couldn’t believe it. I was stumbling to the bathroom early morning and caught it on the doorway. Part of me wanted to be mad at God for giving me another trial, but then I laughed — why not? At least it was on the broken foot side and not my good foot. God has grace in the midst of suffering.

Thanks for everyone’s thoughts, prayers and comments. They mean so much to me. I savor  each one of them!

Hurry Up…Wait

IMG_0223 copyI had forgotten how much I said “Hurry up…Wait” the first time I went through treatment — why wouldn’t I think I would be saying it the again? When the medical community wants action, they really push you to get your information in, but then there are all sorts of delays and communication gaps on their end.

All that to say, I did not start chemo on Monday as expected. Medications got delayed and were not delivered until Wednesday. Yesterday, as I started them, I had a bad headache but today it is better. It probably has more do to with the steroid I have to take 1/week (10 pills) so go along with the Revlimid. Today, my face is flushed and red and I hope I’m not getting the rash associated with the drug. Time will tell.

It was a sharp reminder when the package came in it’s special wrapping and all the warning labels that this is real. Even though it is oral and not infusion, it is highly controlled and toxic. And even though we are on a brief trip with friends, life is not normal. I know that as I look towards the future, this is the beginning point.

And I have choices. I can choose to be afraid. I can choose to be bitter. I can choose to detach or deny. I can choose where to put my faith and what my attitude will be.

In the meantime, I take my pills, count the days, pray, make memories and be faithful in little things. I appreciate those who think/pray for me so much during the journey. I do believe we gain strength from others.

Here We Go Again…

IMG_1148I’ve had the hardest time trying to think of what to name this post:

  • What I’ve dreaded is happening…
  • Hope is in the future…
  • I don’t know what to think…
  • God is in the details…

Yesterday was my oncology appointment. And, yes, as we talked about last time, chemo is starting Monday. It’s no surprise. Just a reality.

I have multiple myeloma, what is considered an “incurable” cancer. We knocked it back 7 years ago. 70% relaspe in 3 years. God has been so very gracious in my life. My M-protein jumped 6 months ago and has slowly, steadily increased since then. They delayed treatment because of the broken leg, but now it is time.

How do I feel about it?

I’m ready. I’m ready to fight. I’m ready to go. We took a road trip to visit Roger’s mother, our youngest daughter and experience ArtPriz with a grandson. We’ve intentionally made memories with friends, kids, grandkids. We’ve advice from a counselor. We have support groups. I’ve focused on eating well and working out. I’ve contributed to ministry. We’ve grown personally. We’ve walked with the Lord. We’ve done our prep work.

Will it be enough? What is the goal? Is it to live longer?

That would be nice and I would love to make more memories and serve the Lord longer. But, bottom line, I don’t know his will for the future. I only know it for today. And that is for me to abandon myself to his will. I’ve lived the last 7 years with the thought that God has given me grace for today and will be with me in tomorrow.

What he asks of me is to be faithful.

I know that’s simple. I know I don’t live it perfectly. I know others may not “get it.” I know it will be harder in the days to come when I don’t feel so good. Like any temptation, I’ve been here before, tempted to be anxious, to lean on my own strength, to think doing the “right thing” will conquer the disease. Bottom line, it’s all up to God’s will. I submit myself to it this morning and every morning.

I do know I am not alone. I have this community of readers who walk with me. You know me — I’ll be honest when I’m not doing so well. Even now, tears flow as I anticipate the future. Faith is not without fear. I appreciate your prayers however the Lord is leading you.

I wonder, are there simple statements of faith that embolden you in your walk with God? I’d love to hear them… (comment button just above the picture)

PS – For those who are interested, the drug is Revlimid which I take orally for 21 days and then 7 off for 2-4 months. That will be followed by an autologous stem cell transplant, another 2-3 months process similar to 7 years ago. Pray for all the approvals, especially in light of healthcare changes.

 

I’ve Graduated!

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Graduation is a amazing event.

I love this picture of my daughter, Amanda, as she graduated college several years ago. You can see so much in her face:

  • Confidence
  • Completion
  • Joy
  • Hope and expectations

What you don’t see in that picture are:

  • The suffering and trials it took to get there
  • The fears she has about the future

The good news is that I have “graduated” in regards to my foot. The orthopedic doctor has released me. There was no cap and gown, but there was the same sense of confidence, completion, joy, hope and expectation that glowed on Amanda’s face.

But what is not so easily seen are the impact the ordeal left on me. I’m still hesitant to trust my foot going down stairs. Escalators, the fear of falling forward, is still with me. I can’t walk long distances or my foot swells.

And I have graduated to fears about the future, especially as I head into cancer treatment. Last time the doctor said he didn’t want to wait any longer, so tests begin later this week. Just like Amanda, I wonder what the future will bring.

So right now, I’m celebrating. I’ll take each day as it comes, knowing that God gives grace for each day. I’m so grateful for those who are celebrating with me, but am even more grateful for those who walk with me into the future.

Have you “graduated” lately? Resonate with these feeling? How can I pray for you? (leave a comment; let me know if it is personal and you don’t want it posted)

Just Do It!

IMG_9576 copyI’ve been having a hard time getting back into writing. My book of poetry is 90% complete – just the finishing touches. Sure, I broke my leg, which disrupted routines. It took a long time just get up and ready in the morning. You would think being stuck at home would be a writer’s paradise. It was not.

I can give a lot of excuses, but let me just say I made choices that began new patterns of how I spend my time.  My lack of mobility crept into a lack of motivation. My lack of energy morphed into laziness. My lack of ability formed a lack of focus.

And I confess, I numbed the pain. I’m not just talking about pain-killing drugs I was on after the break or surgeries that left me in a fog. I’m talking about TV and easy things that numbed feelings of inadequately and frustrations of dependency.

Just like the drugs, it wasn’t my real world. My world has people in it I wanted to encourage. My world has obstacles to overcome. My world also had words that needed to be put on paper.

It’s easier to avoid responsibility. It’s easier to live in dependency, letting others care for me.  It’s easier to spend time watching reality TV, other people living their lives. But it’s not me. It’s not my life. It’s not who God called me to be.

So, “just do it!” is what came to me as I prayed. Turn off the TV – I really don’t like the show anyway. I can get myself to the computer. I can spend time with God and let his spirit flow. That is who God uniquely made me to be. And the process of publishing is back on track.

I can’t help but think of others. They may not be writers. They may not have a broken leg or cancer. But they may be numbing themselves away from what God has called them to do with things that in and of themselves are not “bad.” Are they asking themselves, “Is it who God made me? Is it what He is calling me to do? Is it how he has asked me to reflect his character?”

Just do it!

October

IMG_5215 copyThe word for right now is October. We went to the oncologist last week and, as pleased as he is with the healing of my leg, he feels that we should not wait much longer to begin chemo. My next orthopedic appointment is October 1st, so he want to start immediately after my release from that doctor.

What does treatment mean? 2-4 months of chemo followed by a stem cell/bone marrow transplant (6-9 months total).

The good news: I can now schedule and actually make plans. We’ve been given a green light to celebrate vow renewals with my daughter and her husband in September. I know what time I have to finish projects before becoming fogged over in the chemo zone. People know how to pray.

The bad news: It is a reality check. It’s been a wonderful summer of grace. I’ve enjoyed the freedom of driving and accomplishing. I’ve connected back with friends. I’ve felt relatively good. But the truth is, I still have a disease living within me.

Spiritual truth: Even when I’m doing well spiritually, I still have the disease of death/sin within me. At any moment, it can tempt me to not focus on Jesus or desire to do His will. While I love His grace, I should never take it for granted or think “I’ve made it.” My life is always in His hands.

Thanks for your prayers for me. I don’t take them for granted either. Each day is a precious gift. Who would want to waste it with sin?

I Can Walk!

IMG_0147I can walk!

It was amazing to hear those words from my doctor last week! He was so excited, he got out of his rotation of seeing patients and threw his staff off from their routine.

As Roger and I caught his excitement, he began to back away. I think he was afraid I would being jumping and leaping for joy, so he told me to begin with 1-2 hours a day  without the brace.

 

Spiritual lessons from this? You bet!

 

1 – How often have I dampened the excitement of a new believer, fearful that they might trust to much and become disillusioned? It’s ridiculous when I write the words, but a reality. Why not just let someone enjoy the unbridled feelings of grace in their life? Reality of the pain in life will come soon enough. I don’t need to bring it.

 

2 – My walk is not pretty. It’s amazing how quickly (although it was 8 months!) we forget something as basic as walking. All sorts of muscles in my hip and left leg compensated for my weakness. I have to re-train them to do what is “natural” in a walk — but I have forgotten what natural is!

I think of sin in my life and how I compensate for it. Even when God removes it and there is victory, there is a time of re-learning. I’ve been on compensation mode for so long, it’s easy to let old habits slip back.

 

3 – I’m switching internal messages. When I used to think of something I needed or wanted to do, I usually had to tell myself, “You can’t do that” or “You’ll have to ask Roger to help you.”  Now there is new potential. I can drive. I can go into the office. I can meet friends. It’s amazing freedom. I do have to ask, “Is is worth the energy to do it?” and “Is this what God wants me to do?” but it’s so much fun to consider the possibilities.

 

4 – I am SO grateful to all who have loved me and prayed for me through the last 8 months. I have one more appointment with the orthopedic (he called it a “high five” appointment to celebrate!) in September, but I know it was not he who heals. God holds our lives, our legs, in his hand. Many have been his arms around me during this journey.

 

Don’t stop now. 

 

 

The Changing Face of Cru

CSU 2013I’m sitting at the Denver airport at 5 in the morning, reflecting on the last 5 days. It’s been amazing.

Cru (Campus Crusade for Christ) has grown up. 2 years ago at our last staff conference, our name was changed.

This year we changed our face.

Campus Crusade for Christ (Cru) has a firm foundation laid in it’s past. It’s a foundation of risk-taking faith. I remember when one critic exclaimed, “They would charge hell with a squirt gun!”

We are recapturing that faith in a new generation.

Instead of reminding us of our past, this conference focused on the future. The world has changed in the last 60 years. Our methods have changed with it, in a commitment to reach each generation. Satan has different strongholds. We need different weapons for different contexts.

But what was evident was that in each generation, the Spirit is the same. We feel inadequate in ourselves and have to depend on the Holy Spirit. The Great Commission is the same, and we are closer to seeing it accomplished. The opposition is real, and we need the Spirit of God as He is the victor.

In a world where Christians are often known for what they stand against, we committed ourselves to be known for what we stand for — the good news of Jesus Christ delivered to the lost through an ultimate sacrifice of love.

The stage presented us with fresh new faces representing the future of Cru. They were multi-ethnic, wrestling with issues different than our generation. They honored the past, but looked to a future.

Roger and I are so humbled to be a part of this organization — an organization that dares to change in order to stay true to their mission.

Taking in Good News

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First, the good news — The CT scan showed no myloma in my neck! So with nothing else to check, I’m good to go until August! I’m so grateful to God!

But as I try to take in the good news, I’m flooded with thoughts and feelings. Why was the PET scan positive and the CT scan negative? Which is right? I still have blood tests that indicate the cancer is active. How can I be sure what is true?

There have been so many ups and downs. As I have been transparent in this blog, I wonder if others are weary of my ups and downs?

Then I started to realize that it can be hard to receive good news. We get so use to living in our fears that we fear what we would do without them. Somehow there is safety/ boundaries in fear. We don’t know what to do when we are freed. In fact, it’s hard to believe that we are free.

When it come to news, I realize that I emotionally try to block out most of it, lest it be bad.  I don’t like it; I don’t want to hear it. Bad news has a way of jolting us back to reality whether we want to hear it or not. We can’t escape it. It affects our life.

So then our fear of bad news gets associated with any news, it makes all of it hard to embrace. Good news no longer feels “good” but more “neutral” (the absence of bad). I have a tendency to try to ignore it, and unlike bad news, I often can. I can choose to continue to live in fear, afraid to be excited about good news.

It’s kinda like a girl not wanting to smile back at a boy lest it not be real…

As I think about this good news, right now, I’m choosing to embrace it. If it was that boy, I’m running over to him with abandonment and throwing my arms around him. Yes, bad news may come later and maybe this is a false moment of hope. But it is a moment of hope.

God has allowed this moment of hope in my life in the same way he has allowed the suffering.

To live fully, I choose to embrace both.